Lupus Erythematosus: Tips to Improve Your Quality of Life

Systemic lupus erythematosus (SLE) continues to be an unsolvable problem for modern medicine, since there is no effective treatment that can stop connective tissue damage in the body at this time.

The main goal of SLE therapy is to slow down pathological processes, as well as to improve the quality of life of patients. And while achieving a sustained remission depends on the talent of the treating physician, following the seven simple tips listed below will help avoid the torment typical of lupus erythematosus. 

Keep an Optimistic Mood 

There are a number of medical studies showing that patients who resist despair respond many times better to treatment than patients who nervously await the “inevitable end”.

Regular visits to a psychologist and interaction with optimistic patients who have also been diagnosed with SLE can help counteract depressive moods. 

Observe the Consistency of Treatment 

Strict following of the schedule of taking the drugs prescribed by the doctor is the main condition for the effectiveness of therapy. However, sometimes the treatment schedule can be disrupted because patients do not have the money to buy the necessary medications. 

This problem can be solved by buying generics – full analogues of the original drugs, but cheaper, because their price does not include the brand markup. Generics are difficult to find in U.S. pharmacies, but they are freely available in Canadian online pharmacies. 

For example: many patients with SLE claim that canadian pharmacy hydroxychloroquine sells about 10 times cheaper. Considering that one has to take hydroxychloroquine for months and sometimes even years, the savings can be very significant. 

Increase Sleep Time 

Patients with SLE who get at least 10 hours of rest at night have been proven to feel much better and are less dependent on drugs like Plaquenil. 

Avoid Physical Overload 

Patients with SLE should accept the new reality of their health and not try to keep their previous regimen of physical activity. Work that requires the use of force is better divided into several steps to avoid the development of fatigue, which almost always worsens the symptoms of lupus. 

Do health-Improving Gymnastics

The recommendation to avoid overloading does not mean that patients should give up any activity at all. On the contrary: a properly chosen gymnastic complex (yoga, pilates, walking, etc.) will help reduce overall fatigue, decrease the frequency of headaches, protect your joints from deformity and your heart from pericarditis.

Limit Meat Consumption 

Complete refusal of animal foods is not required for SLE, but the amount of meat and fish in the diet should be reduced to an average of 10-20% – depending on tolerance.

The major part of the ration should consist of vegetables, fruits and whole-grain products.

Build a Support Network

Building a support network is crucial for improving the quality of life of individuals with lupus erythematosus. Living with a chronic condition can be challenging and can cause feelings of isolation and frustration. A support network can provide emotional support, encouragement, and practical assistance. This can include family members, friends, support groups, and healthcare professionals. Building a support network can help individuals with lupus erythematosus feel less alone and more empowered to manage their condition. 

Support groups can be particularly helpful as they allow individuals with lupus erythematosus to connect with others who are experiencing similar challenges. These groups can provide a safe and supportive environment for individuals to share their experiences, learn from others, and gain insight into their condition. Online support groups and forums can also be a valuable resource for those who are unable to attend in-person meetings.

Prioritize Self-care And Stress Reduction  

Managing stress is key to improving the quality of life for those with lupus erythematosus. Practicing self-care and relaxation techniques such as meditation, yoga, and mindfulness can help reduce stress and promote overall well-being. Additionally, taking breaks when needed and prioritizing rest can help manage fatigue and prevent flare-ups. 

In addition to meditation, yoga, and mindfulness, individuals with lupus erythematosus can also benefit from other self-care practices such as getting adequate sleep, setting realistic goals, and engaging in activities that bring joy and pleasure. Support from loved ones and counseling can also help manage stress and improve mental health.

Lupus: Tips for coping

Maintain a Healthy Lifestyle 

Eating a balanced diet rich in nutrients can help manage symptoms of lupus erythematosus. Avoiding smoking and excessive alcohol consumption can also help prevent flare-ups and improve overall health. Engaging in regular physical activity, as tolerated, can help manage stress and improve overall physical function. 

A balanced diet rich in nutrients can also help manage symptoms of lupus erythematosus, such as inflammation and fatigue. Including a variety of fruits, vegetables, lean proteins, and whole grains can provide necessary vitamins and minerals. Staying hydrated and limiting caffeine intake can also help manage symptoms. Physical activity should be tailored to individual needs and abilities, and may include walking, swimming, or gentle stretching.

Don’t Overdo It With Dietary Supplements 

Finally, you don’t need to take questionable supplements that promise rapid improvement of your well-being with SLE. Practice shows that in the vast majority of cases, taking these supplements brings no result, and sometimes even provokes a worsening of the disease.

Advocate For Your Needs And Rights

It’s important to advocate for oneself when it comes to managing lupus erythematosus. This may involve communicating with healthcare providers about symptoms and concerns, seeking out appropriate resources and support, and advocating for reasonable accommodations in the workplace or other settings. It’s important to remember that individuals with lupus erythematosus have the right to equal treatment and access to care.

Self-advocacy involves being proactive and taking action to ensure that one’s needs are met. This may involve educating oneself on one’s condition, being assertive in communicating with healthcare providers, and seeking out legal or social services if needed. Joining a patient advocacy group or community can also provide resources and support. By advocating for oneself, individuals with lupus erythematosus can improve their quality of life and ensure that their needs are being met.

DISCLAIMER: All information contained on the website featured in the article, including recommendations of our support service, is intended for general information purposes only and cannot be used as genuine treatment instructions without the approval from your health care professional in regard to your health condition and the risks associated with any side effects in your particular case. The website does not advertise or promote any manufacturers or their products. Any information on this website is not intended as an instruction or an action guide and cannot be used without a professional medical consultation.